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Hearing on "Examining Proposals that Provide Access to Care for Patients and Support Research for Rare Diseases."

Date:
Location:
2322 Rayburn House Office Building

The Subcommittee on Health of the Committee on Energy and Commerce held a hearing on Wednesday, June 14, 2023, at 10:30 a.m. in 2322 Rayburn House Office Building.  The hearing is entitled, “Examining Proposals that Provide Access to Care for Patients and Support Research for Rare Diseases.”

 

Key Documents

Opening Statement from Ranking Member Pallone as prepared for delivery

Opening Statement from Subcommittee Ranking Member Eshoo as prepared for delivery 

 

Livestream

 

Legislation

H.R. 3226, the PREEMIE Reauthorization Act of 2023 

H.R. 3838, the Preventing Maternal Deaths Reauthorization Act of 2023

H.R. 3843, the Action for Dental Health Act of 2023

H.R. 3884, the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 

H.R. 3821,the Firefighter Cancer Registry Reauthorization Act of 2023

H.R. 2365, the National Plan to End Parkinson’s Act 

H.R. 3391, the Gabriella Miller Kids First Research Act 2.0 

H.R. 3887, the Children’s Hospital GME Support Reauthorization Act of 2023 

H.R. 3836, the Medicaid Primary Care Improvement Act 

 

Witnesses

Dr. Elizabeth Cherot
Senior Vice President and Chief Medical Health Officer
March of Dimes

Testimony

 

Dr. Alexis A. Thompson
Chief, Division of Hematology, and Elias Schwartz MD Endowed Chair in Hematology
Children's Hospital of Philadelphia
 

Testimony

 

Dr. Meredithe McNamara
Assistant Professor
Yale School of Medicine

Testimony

 

Dr. Miriam Grossman
Child, Adolescent, and Adult Psychiatrist

Testimony

 

George Manahan
Parkinson's Advocate and Patient

Testimony

 

Kevin O'Connor
Assistant to the General President for Government Affairs and Political Action
International Association of Fire Fighters

Testimony

 

 

Issues:Health