Hearing on "Examining Proposals that Provide Access to Care for Patients and Support Research for Rare Diseases."
The Subcommittee on Health of the Committee on Energy and Commerce held a hearing on Wednesday, June 14, 2023, at 10:30 a.m. in 2322 Rayburn House Office Building. The hearing is entitled, “Examining Proposals that Provide Access to Care for Patients and Support Research for Rare Diseases.”
Key Documents
Opening Statement from Ranking Member Pallone as prepared for delivery
Opening Statement from Subcommittee Ranking Member Eshoo as prepared for delivery
Livestream
Legislation
H.R. 3226, the PREEMIE Reauthorization Act of 2023
H.R. 3838, the Preventing Maternal Deaths Reauthorization Act of 2023
H.R. 3843, the Action for Dental Health Act of 2023
H.R. 3884, the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023
H.R. 3821,the Firefighter Cancer Registry Reauthorization Act of 2023
H.R. 2365, the National Plan to End Parkinson’s Act
H.R. 3391, the Gabriella Miller Kids First Research Act 2.0
H.R. 3887, the Children’s Hospital GME Support Reauthorization Act of 2023
H.R. 3836, the Medicaid Primary Care Improvement Act
Witnesses
Dr. Elizabeth Cherot
Senior Vice President and Chief Medical Health Officer
March of Dimes
Chief, Division of Hematology, and Elias Schwartz MD Endowed Chair in Hematology
Dr. Meredithe McNamara
Assistant Professor
Yale School of Medicine
Dr. Miriam Grossman
Child, Adolescent, and Adult Psychiatrist
George Manahan
Parkinson's Advocate and Patient
Kevin O'Connor
Assistant to the General President for Government Affairs and Political Action
International Association of Fire Fighters